For people born with Cystic Fibrosis (CF), life is consumed with medication, treatments and hospital stays.
For six-year-old Demi Bertrand, a new medication, Orkanbi, has been a game changer.
Orkanbi replaces a protein that regulates fluid in the lungs for those with CF.
Demi went from three breathing treatments a day to only one.
She also sleeps through the night and goes to school without waking up coughing and vomiting.
The issue is, Orkanbi costs $251,000 per year before discounts.
Although Orkanbi does not cure the disease, it makes life for those suffering a whole lot easier.
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