BATON ROUGE, LA (WAFB) - His face passed before me for my Facebook photo album "Babies Loved By My Facebook Friends". It was the face of a child who is no longer with us. The parents of baby Hudson, Christopher and Sasha Bain, were asking that people donate for tote bags to help all parents who find themselves with their children, long-term in the hospital.
I had to talk to her.
"He passed November 18th 2014, he had an unknown genetic disorder," explained Sasha Bain.
He had come home from the hospital after birth a healthy child, but two months into Hudson's young life, a mysterious illness set in. He was hospitalized and almost immediately he started to decline.
Sasha Bain said they were never in the neo-natal intensive care section, they were in Our Lady of the Lake's regular section. But she saw the families in the baby intensive care, which made her wonder.
"We spent every time he (Hudson) got sick we were there for a week. Sometimes I'd seen other families who had flown in from other parts of the state," said Bain. "Some of these parents, you don't think about what to grab when you leave. I have parents in town, but they may not. How do they get what they need?"
That's when the idea for Hudson's Helpers was born. A tote bag, packed with all kinds of things a family might need during long-duration hospital stays.
That's when Sasha gathered her friends and they planned.
They decided each tote bag would contain a children's book, Handmade Items For Babies (Stuffed Animals, Etc.), Travel Sized Toiletries (Deodorants, Toothpaste/Brushes, Shampoo & Conditioner, Etc.) and a roll of quarters.
Sasha said she also wanted Hudson's Helpers to gather donations to help families when insurance won't pay for the entire cost of adaptive equipment that makes life at home possible for a child.
"Hudson's Helpers will help families get adaptive equipment. As much as we can, we might pick up the money that insurance won't."
These friends have also organized a "Mr. and Miss Trick or Treat for Hudson" pageant. You'll find all the details on their Facebook page.
When Hudson died, he was at OLOL. Texas Children's Hospital geneticists had not been able to identify the child's disease even using
his own DNA.
They asked Christopher and Sasha to let them continue to study his blood work and find exactly which genes caused his problems.
"Maybe one day we'll have a Hudson Syndrome," Sasha said.
I asked if it would make her happy.
"When he passed away," she said, "He was such a special child and after learning about all his genetics maybe his whole purpose being here was for this to be found; for a new syndrome or disease to be discovered because there could be other parents in this situation who could have children and they could have the answer."