BATON ROUGE, LA (WAFB) - Dozens of people packed the floor of the senate chambers to advocate more funding for NOW waivers.
NOW waivers allows children with disabilities to be taken care of at home instead of an institution. Advocates for the waivers expressed to a finance appropriations committee that there is to be more state funding for the waivers.
Rihannon Traigle, who was at the committee meeting, said her son Riley has a muscle disorder with a life expectancy of 20 years. She said her son and 13,000 others are on a list to receive the waivers. Traigle believes with more funding a slot could open up, but she knows time is running out.
"My fear is that by the time Riley name would come up that he may lose his life before then," said Traigl.
Elaine Harmon is a single mom and said her son has cerebral palsy. She said if the state approves more funding for NOW waivers it can potentially changer her family's life.
"I hope that it will take us out of the struggle of day to day living," said Harmon.
Lawmakers have two more weeks of session and must have a budget approved by June 11th.